Originally posted by fafner@May 13 2004, 02:41 AM
... schizophrenia?! N-no! I mean I'm not of course! Fafner is not a false name for another personality, it's my real name of course! 
If it was not it would mean I'm sharing several personnalities, it would mean schizophrenia and I'm not!
You're thinking of Multiple Personality Disorder. That's different from Schizophrenia.
[b]snorkyller:They thought about the Chronic Fatigue Syndrome for me. They finaly said that I can't have it because of the lack of symptoms except for fatigue and some others. They told me that CFS often begins with a health problem, often viral, which 'cause fatigue. The person have difficulty to get out of that and the fatigue becomes chronic, which cause the apparition of many others symptoms (because of the tiredness of the body).[/b]
Yeah, it's a tricky one because it's a syndrome. Usually the diagnosis is made by eliminating everything else. The first time I had it, it took four years to get a diagnosis.
Do you think it could be your case DrFrag? Can you remember being sick before the apparition of CFS? (I don't know, someting like really a big flu).
Yeah, a severe flu went around at work in early February 2001. People were off work for up to two weeks. I got it and never really recovered. I went into a decline and was unable to work by June.
I also had it as a teenager from 1990-1996, but the onset was very gradual and not triggered by a viral infection. I had a slightly different set of symptoms then (more abdominal pain, no headaches). It's thought there may be six or seven different strains. Most people I've known had it triggered by Glandular Fever.
Another thing... Even if you don't have sleep apnea, I think that having "28 choking episodes an hour" certainly couldn't help you in your sleep. It can give you a less deep sleep. So if you don't have enough deep sleep, you may have to sleep longer (more hours). No?
Perhaps, but then more sleep should make me feel more rested. When they did the first test I slept 13 hours and they thought that was unusually long, so I'm not sure people with Sleep Apnoea sleep longer to make up for shallow sleep. Also, I wake up exhaused whether I get 8 or 28 hours sleep. The difference is if I don't get enough sleep I end up with massive abdominal pain.
I never had muscle pain for 2 days after an exercice. It exactly was one of the things that made the doctors think that I can't have CFS...
You saw where I was coming from!
It's an odd delayed symptom that most people with CFS get but I've never heard of it outside of CFS, so it can be a good indicator.
Exactly the same for me!!! But for me it was clonazepam... No only it's a muscle relaxant but it's an anti-convulsion. It was created to treat epilepsy and now it's used for other thing like anxiety. This drug is a mystery for me... Why is it helping me since 3 years while they tried many other similar drugs which doesn't helped. I often have convulsions while I sleep which wake me up ; more and more often after 4:00. So I wonder if it's because the effect of the drug is ending (7 hours). I wonder why I have such convulsion while sleeping.
That is so weird. In 2002 I was really sick and had convulsions in my sleep every night. Enough to wake me up or accidently hit my wife in my sleep. The paramedics immediately thought it was epilepsy. They shot me up in both legs with medazalan and it still wouldn't stop. But the weird thing is I could stop it by standing or sitting up or concentrating really hard. Obviously I couldn't do any of these things while asleep! They gave me an EEG in hospital which came back abnormal but nothing they'd seen before. It definately wasn't epilepsy - you can't stop that by concentrating. I got put on the waiting list for the sleep clinic, and in the meantime I went on diazepam (which is very similar to clonazepam). It helped a lot but I only take it once a week to avoid building up a tolerance or dependence. So whenever I want to have a good day.
I moved house and my health improved enough that I didn't notice any convulsions. Then while I was being tested by the sleep clinic they accidently picked up Sleep Apnoea. They decided they'd better treat that before doing any more testing so it wouldn't complicate things. That saga went on for two years until I gave up, so I'm still no better off. They couldn't continue the testing for the convulsions with Sleep Apnoea still showing up.
One thing I know for sure - I never had this problem in the years that I didn't have CFS. So I'm not too worried - when the CFS goes I'm positive the sleep problems will go with it.
There's still the unsolved mystery of the convulsions though. It's not listed as a symptom of CFS or Sleep Apnoea. I suspect it's made worse during times when my general health is worse, but that doesn't tell me much.
Hey, have you had an EEG? (brain scan)
Unfortunately, doctors doesn't seems to answer such questions... They seem to think that only the machine (the tests...) can aswer everything. They don't seems to think that they can find many thing by themself...
Anyway, sorry for talking so much about that, I'm just frustrated that I could do nothing...
It's good to vent.
When you have something complicated the doctors don't have time for you. It takes a lot of research that is usually left up to the patient.
)
:wahah: But for me it was clonazepam... No only it's a muscle relaxant but it's an anti-convulsion. It was created to treat epilepsy and now it's used for other thing like anxiety. This drug is a mystery for me... Why is it helping me since 3 years while they tried many other similar drugs which doesn't helped. I often have convulsions while I sleep which wake me up ; more and more often after 4:00. So I wonder if it's because the effect of the drug is ending (7 hours). I wonder why I have such convulsion while sleeping. 
While I found that funny, your description was terrifying. I have more physical problems than I can keep track of, most are ever-present, but a few seem to lie in wait, hoping to strike when I least expect it, or am least able to deal with it. :angry: Both of my hips are bad, one is bone against bone, the other is just plain painful, whether it is arthritic, I do not know. My left arm and leg exhibit involuntary movement, much of which is simply annoying, but sometimes it is quite serious. But the sheer terror of awakening unable to move, that would freak me out. Have you gotten used to it? or does it freak you out every time? :huh:
